A Literary Fundraiser to Benefit Rare Respiratory Disorder
|Lydia Kang's Control|
(Image courtesy of Goodreads.com)
Authors around the country have come together to raise money for Congenital Central Hypoventilation Syndrome (CCHS), a rare, life-threatening disorder that affects breathing. The initiative is spearheaded by author and physician, Lydia Kang, whose debut novel, CONTROL, features a protagonist with CCHS.
"When I wrote CONTROL, I wanted to create a heroine who faced struggles that readers don't always get to see,” says Kang. “After the book released, I wanted to bring a focus back to the non-fictional heroes--the children with CCHS and the people who champion them."
The funds raised will go to the Center of Autonomic Medicine in Pediatrics, or CAMP, a program run through Ann & Robert H. Lurie Children’s Hospital of Chicago. There, With sophisticated diagnostic testing and pioneering research, CAMP provides individualized services for these patients referred from 50 different countries and conducts research aimed to maximize their quality of life.
Since this disease primarily affects children, it’s fitting that most of the authors participating in the fundraiser write for children, tweens and teens. Donors will receive thank you gifts ranging from bookmarks and stickers, to three and five book bundles, to a character name in an upcoming book from one of the participating authors. Everyone who donates $50 or more will be invited to participate in a virtual VIP party with the participating authors.
The group hopes to raise $5000 or more and the fundraiser runs through September 20, 2014.
"I've been so grateful for the authors who have donated so selflessly,” says Kang. “The CCHS community needs research dollars, so every effort to raise funds and awareness is a huge help."
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